Endometriosis stories shared

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Endometriosis stories shared

Limestone Coast girls and young women are being encouraged to tell their stories about endometriosis to a Parliamentary Committee looking at the condition.


According to current data, about one in seven women suffer from endometriosis, which causes chronic pain that dramatically impacts the lives of sufferers, including their work, family, and study.


Diagnosis can be difficult and often takes years.


Endometriosis often first makes an appearance in the early to mid-teens, often without young people realising what it is.


It is a disease where tissue similar to the lining of the uterus grows outside of the uterus.


The two most common signs of endometriosis are pelvic pain and infertility.


Much of what the Parliamentary Committee has heard so far has been focused on Adelaide.


As access to health and support services is different for people living in the country, the Committee is travelling to regional areas and is keen to hear from them about their experiences.


The committee will be visiting Mount Gambier on September 18 to receive verbal evidence, along with other regional locations later in the year.


Minister for Primary Industries and Regional Development Clare Scriven said it was important the experiences and opinions of regional women and girls are considered as part of this important inquiry into women’s reproductive health.


“I encourage mothers, daughters and friends to support each other in sharing their stories with this committee when they come to Mount Gambier in September, or by sending a submission to the committee,” she said.


“Submissions can be short, or more detailed. What matters is that regional girls and women have the opportunity to be heard.


Select Committee Into Endometriosis chair Catherine Hutchesson, a long time sufferer, said she was pleased that a landmark enquiry had been established into a disease that affects one in seven women and girls and those assigned female at birth.


“Whilst we have heard from health care professionals, adult sufferers and advocacy groups as well as educators, we would like to hear from younger women to better understand the gaps in learning/education as well as opportunities to seek advice and treatment,” she said.


“This is especially so for our regional communities. Whilst our committee has visited the Riverland and soon Mount Gambier, we would like to hear from women in our smaller regional areas as well so that we better understand the limitations that may occur.


“Living with endometriosis is difficult and we have heard some harrowing stories, but early intervention can lead to better outcomes. I implore sufferers to come forward and share their experiences with the committee so that we are able to put forward the best recommendations.”


If you are interested in making a submission, presenting to the committee or attending a public hearing, please register your interest with the Parliamentary Officer via email at scendo@parliament.sa.gov.au or on 08 8237 9384.


The terms of reference and other information regarding the inquiry are available on the Parliament of South Australia website at – www.parliament.sa.gov.au/en/Committees/Committees-Detail or by emailing scendo@parliament.sa.gov.au.

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